Showing posts with label write. Show all posts
Showing posts with label write. Show all posts

Saturday, June 20, 2015

Sixty-Five Roses

            I didn’t know that was going to be the last day. I swear I didn’t know. If I had known, I would’ve baked oatmeal raisin cookies instead of buying chocolate chip. I would’ve worn the earrings she liked—the ones that looked like little turtles. I would’ve brought a game she actually enjoyed playing. But I didn’t know, and I didn’t bake or wear or bring, and that was the day Rose died.
***
            “Took you long enough!” she yelled. I rubbed my hands with sanitizer upon entering room 223, trying not smirk at the way her voice cracked when she was irritated. Florescent overhead lighting mimicked noon in the worst possible way.
            “Oh, be quiet. It’s eight in the morning, you brat.”  A shiver seized the hair on the back of my neck as I adjusted the thermostat. There was no point in asking if she wanted a blanket—she didn’t. My eyes brushed her bones, knowing that drum-tight, moon-colored skin was the normality of her condition. Her blue lips fused into a firm line as she adjusted her oxygen cannula, then her floppy sunhat, which she insisted on wearing year-round.
“What’d you bring me?” she asked.
"I'll tell you what I should've brought you—nothing.” Rose laughed in reaction, mucus bubbling in the back of her throat. “Hey, can you even see with that thing on?”
            "Obviously. Not that there’s much to see here, anyway," she said. And she was right. With rounded furniture in varying shades of gray and a third story view of sidewalk cracks and bus station smokers, blindness seemed like a tumor worth trading for. Out came the cookies and the deck of cards.
            "Seriously? We played Uno yesterday," Rose said, not at all trying to conceal her disappointment. I constantly eyed the growing dullness of her corn stalk hair and wondered whether she was actually swallowing the pills I placed next to her milk. But when it came to what she was feeling, there was no guesswork involved. Methodically, I took off my coat, tossed it onto the empty recliner, and sat at the foot of the bed.
            "Well, Uno is a classic. And the classics are classics for a reason,” I replied, shuffling.
            “That’s what my dad says about his music.” I paused for a moment to watch her. Her freckles hid in response to January snow, clashing with the perennial power of her eyes. Her port dressing was coming loose, barely visible above the neckline of her t-shirt.
            “When was the last time you talked to your dad, Rose?” Now it was her turn to pause.
            “Last night.”
            “And what did he say?”
            “Nothing. Just the usual stuff.” She was growing more and more annoyed, her gaze refusing to set from my fingers and the cards.
            “Is he coming to see you, soon?”
            “Deb, does it matter?” Her eyebrows blew together and furrowed. “He’s too busy with work. Besides, you’re way more fun. And you’re a nurse. If I was dying, you would know how to save me.” She pushed her bangs behind her ears and I could see tiny dewdrops shimmering on her forehead.
            “Why would you say something like that?” I asked.
            “Because it’s true.” A cough rattled from within her ribs, proof that disease had rooted itself in a place neither of us could reach.
            “Here—we’ll start with more cards this time. It’s harder, but it’s also more fun.” Rose’s nostrils flared as I passed her seven Uno cards and straightened the deck between us. She froze, staring at her purpling fingernails.
            “You won’t stop coming, will you, Deb?”
            “Well, considering how often you tease me, I should.” I dug a finger into her side and a single, scratchy laugh was uprooted from behind her teeth. “But, no. I’ll always come. Life would be far too boring without you.”
            “Ugh. Stop mushing out on me and play.” She picked up a chocolate chip cookie, bit into it, and grimaced. “You know,” she said, chewing, “these taste like shit.”
***
            I often look back on that day and consider the things I could’ve done to give myself more time with her. I ask myself if the meticulous lip-liner was worth it—if my sedan really needed to be washed. They called it “Rose’s Celebration of Life,” but that’s not at all what it was. Or at least that’s not what it turned out to be. I withdrew into my skin, safe and unchanged, and peeked: thirty people in a dim room they could barely afford, listening to a man preach about a god they didn’t believe in, weeping over the loss of a girl they never paid attention to.

Wednesday, September 4, 2013

Back-To-School...Senior Year?

Today was my second day as a Saint Joseph High School senior.
I can't believe I'm this old.
What the heck.

I got out of the hospital (as expected) on Monday. Since it was Labor Day, none of the outpatient testing staff was here, so I did bedside pfts. A little less accurate, but helpful nevertheless. I was so happy to find out that my numbers had improved to 75%! After such a successful test, my doctor had no reservations in sending me home. Monday night, however, was a different story.

Basically, I had an anxiety attack. The first day back to school always gets me. Not the first day after summer vacation, but things like coming back from winter break or after getting out of the hospital. I think it's like that for a lot of CFers. We've just spent days and days (if not weeks and weeks) in a clean, quiet, calm environment. It's relaxing. It's safe. People are paid around the clock to take care of you and help you feel comfortable. Coming home from that atmosphere, where you're almost always alone and at ease, to a busy home where you're no longer the center of attention is, quite frankly, stressful. And I don't mean for this to sound self-centered...and if it does, that's not what I intend. It's just a big change. Polar opposites. And boy can I say that I freaked out.

I feel so bad for my boyfriend and my parents. I was going stark-raving mad. Crying and crying about how I wasn't ready to go to school. About how I hadn't completed my homework assignments (which was completely my fault, and really didn't have much to do with the hospital admission) and I had no friends in any of my classes and I had had the most horrible summer of my life. And, looking back, I know how petty and selfish I was being. I had a good summer. There were good moments. But losing your two best friends within two months of each other...it takes its toll on you. My brain is a scary place, right now.

Physically, I feel good. My lungs feel GREAT. My muscles, however, don't. I was too exhausted to use them in the three weeks leading up to my hospital stay, and naturally, I rested for seven straight days when I was there. I'm hoping to get in the gym once I get my PICC line out and get some of my strength back, especially with dance coming up again. It started this week, actually...

That's it, basically. I'm feeling stressed about school and college apps, guilty for my seemingly bi-polar moods and the way I'm taking it out on my loved ones, and just plain tired. But I'm also trying to keep that positivity going. I was only in the hospital for one week. I made it out in time for my last first day. My mom and dad have been so amazingly kind and understanding.

I've just gotta keep dealing with this grief, and try to be happy, again.

Saturday, August 31, 2013

Sheets

The sun went down,
but I'm still here.
   There's still a tube inside me.
      My dinner tray is in the sink.
         The whiteboard says my name.
The thermostat reads "55"--
that's something
I can choose.
But
my best friend died
right down the hall
wrapped up in sheets
like mine.
I want to leave,
but I cannot.
The moon
can't take my place.